Thursday, January 31, 2013
31 January 2013 ....
Time flies fast ...
A week more to Chinese Lunar New Year ....
The Year of SNAKE !~
And 3 month later will be my son RAVE 2nd birthday !~
Weeeee......
Well, frankly speaking is not a easy task to take care of a child with a Pierre Robin Sequence ..
As i need alot alot of patience, time, energy, sleepless night &&&
Family nagging instead of family encouraging or comforting......
Rave was born on 20 April 2011..
When the moment he arrived on earth,
Doctor diagnose that he had a cleft palate...
Which is similar with me when i am young....
So he had to feed thru by a NG Tube instead of a normal milk bottle.....
During the stay at NICU, Specialist doctor start to diagnose another problem on Rave....
That is, He had low oxygen which will cause him turn blue....
We were shock to get the news...
So doctor suggested us to get him a Trachestomy to help him on his airway problem..
To help him use less energy to breath and focus on growing up....
So i make the major decision by accepting the choice to save my little boy...
After the OP everything when well and smooth, and was discharge on the 29 July 2011....
During the care at home, was kind of stress to me ...
As everyone is working, only i am the main care taker...
Though husband did promise me that he will help out ...
But that was a empty promise....
During the 1 year 6 months of taking care him....
I lost my freedom ....
I lost my friends ....
I lost my own income .....
I lost my job....
I even lost my dignity ....
Not many friend understand the situation i am in...
And i would't choose to leave ....
I personally know that he is the kind of MAN or HUSBAND i want ....
But ... yet i still to stay .....
Whereby i still complain and nag
Despite i have lost so many thing...
I do gain goodies during the care ...
I gain the knowledge of taking care a PRS child (Hopefully the next baby is a healthy baby =) )
I gain the bonding with Rave( Despite i still punish him if he did smth wrong )...
I gain the stage of growing up with him ...
I witness what other never witness...
Example:
The moment he can bottle feed ...
The moment he know how to flip....
The moment he know how to talk baby language ....
The moment he know how to crawl ...
The moment he know how to Sit ....
The moment he know how to Stand ....
The moment he know how to Walk ...
The moment he know how to call PAPA & MAMA (AH MA, AH GONG, JIU JIU and etc) ....
Which his father and other family hardly join in this moment ....
Even the every BIG MOMENT which fall on 04/01/13 ...
REMOVE THE TRACHEOTOMY ....
That was the moment ...
Where i told myself ...
I and Rave REALLY MAKE IT ....!!~
Now FINALLY !~
He had fully recover!~
I am truly very happy over the moon...
And would also like to thank the KKH specialist doctor and special nurses for the help and guide during the care and assisting my son and me......
Without their help, everyting would have been so successful....
THANK YOU !~ (DR Annette Ang, DR Teoh Oon Hoe, Nurse Mariani, Nurse Rachel).....
Now I am currently looking for a childcare center for Rave..
As there is anybody can look after him, despite he is well an healthy now ..
As my husband, mother-in-law and sis-in-law all need to work....
As for my mother, she need to take of the housework, two brother and husband ...
Which i doubt she will have time for Rave.....
So childcare is the only place that there will be somebody helping me to take care of him...
And also educate him....
Only wish is:
*****Hope he will grow more healthy and stronger then before ....*******
Mummy LOVES you!~
JaCe revealed the secret on
12:39 PM
